In this document, “you” refers to you or your child (for parents/ guardians consenting on behalf of a child). You are participating in a research project supported by the Eureka Research Platform, which maintains the following privacy policies and data security measures.
Your information will be used for research
Information about your background, health, behaviors and other factors that might help researchers predict, prevent or treat diseases will be collected, as needed, for the research study or studies you choose to join. This information will be used in research analyses, and results of these analyses will be presented in scientific conferences and published. These presentations and publications will not show information that identifies you or any other individual in the study without your explicit permission. Each study you choose to join will have a specific description of the types of data the study will collect and how your data will be used, including your location data (if needed for that study). You can choose whether to agree or decline to participate in each study based on the details of the informed consent.
We will contact you when we need you
We will send you an email, text message (SMS) or app-based notification when we need you, for example when one of your studies needs you to do something. We will also contact you about new studies you might want to join. Depending on your mobile phone plan, you may be charged for text messages you receive from us.
Your identity will not be shared
We will never sell, rent, or lease your data or identifying information, or voluntarily share it for any reason without your permission. We may share your data, without your name, location data, and other identifiers, with other qualified researchers so your data can be used for other research studies. We will not share your identity, location data, contact information, or any other identified data with any research studies without your permission.
You are responsible for keeping your login credentials secure
When you registered for Eureka, you provided an email and/or phone number and a password. You can use this to sign into our system and see some of the health information you’ve provided to us (e.g. your height and weight, medication list, etc). You should be very careful not to provide your login information to anyone else, or they could sign in as you and be able to see that same health information. If you are worried that someone else may be using your login information, please let us know immediately, or change your password yourself through the website login page or your app settings page.
If required by law, we may need to disclose information about you
In accordance with the law, we may be required to take actions to prevent serious harm to yourself or others. This may include divulging information about you to authorities. Otherwise, we will do everything we can to keep your study information private, and we will resist any demands for information that would identify you.
We keep our data really secure
While we cannot provide an absolute data security guarantee, your information will be transmitted and stored using state-of-the-art security systems similar to those that protect websites used by banks and electronic health record systems. Specifically, our platform is hosted on Amazon Web Services (AWS), a cloud-based server system and computing services. These systems and services are compliant with the U.S. Health Insurance Portability and Accountability Act of 1996 (HIPAA). All research data are stored behind a secure firewall, guarded by intrusion detection software, and encrypted at rest and in transit in our Amazon Virtual Private Cloud.