In this document, “you” refers to you or your child (for parents/guardians consenting on behalf of a child). The Eureka Research Platform maintains the following privacy policies and data security measures.
Your information will be used for research
Information about your background, health, behaviors and other factors that might help researchers predict, prevent or treat diseases will be collected for research. This information will be used in research analyses, and results of these analyses will be presented in scientific conferences and published. These presentations and publications will not show information that identifies you or any other individual in the study without your explicit permission.
We will contact you when we need you
We will send you an email, text message (SMS) or app-based notification when we need you, for example when one of your studies needs you to do something. You can set your preferences for how you want to be notified – remember that, depending on your mobile phone plan, you may be charged for text messages you receive from us.
Your identity will not be shared
We will never sell, rent, or lease your identifying information, or voluntarily share it for any reason without your permission.
You decide how to share your data
We’ll ask if you want to share the data you donate with other research studies that you’re participating in (so you don’t have to re-enter data for two different studies), and with other qualified researchers without your name or other identifiers (so your data can be used to help people everywhere). You’ll also have the option of setting your default data sharing preferences to “Share all data with studies I join”, so we don’t have to ask you every time.
You are responsible for keeping your login credentials secure
When you registered for Eureka, you provided an email or phone number and a password. You can use this to sign into our system and see some of the health information you’ve provided to us (e.g. your height and weight, medication list, etc.). You should be very careful not to provide your login information to anyone else, or they could sign in as you and be able to see that same health information. If you are worried that someone else may be using your login information, please let us know immediately, or change your password yourself through the Participant Homepage.
If required by law, we may need to disclose information about you
In accordance with the law, we may be required to take actions to prevent serious harm to yourself or others. This may include divulging information about you to authorities. Otherwise, we will do everything we can to keep your study information private, and we will resist any demands for information that would identify you.
We keep our data really secure
While we cannot provide an absolute data security guarantee, your information will be transmitted and stored using state-of-the-art security systems similar to those that protect websites used by banks and electronic health record systems. Specifically, our platform is hosted on Amazon Web Services (AWS), a cloud-based server system and computing services. These systems and services are with the U.S. Health Insurance Portability and Accountability Act of 1996 (HIPAA). All research data are stored behind a secure firewall, guarded by intrusion detection software, and encrypted at rest and in transit in our Amazon Virtual Private Cloud.